Please use this identifier to cite or link to this item:
https://hdl.handle.net/20.500.14279/19342
DC Field | Value | Language |
---|---|---|
dc.contributor.author | Ioannou, Phivos | - |
dc.contributor.author | Kouis, Panayiotis | - |
dc.contributor.author | Kakkoura, Maria G. | - |
dc.contributor.author | Kaliva, Margarita | - |
dc.contributor.author | Toliopoulou, Aristoula | - |
dc.contributor.author | Andreou, Kyriacos | - |
dc.contributor.author | Behan, Laura | - |
dc.contributor.author | Lucas, Jane S. | - |
dc.contributor.author | Papanikolaou, Vicky | - |
dc.contributor.author | Charalambous, George | - |
dc.contributor.author | Middleton, Nicos | - |
dc.contributor.author | Yiallouros, Panayiotis K. | - |
dc.date.accessioned | 2020-11-09T11:52:18Z | - |
dc.date.available | 2020-11-09T11:52:18Z | - |
dc.date.issued | 2020-04-22 | - |
dc.identifier.citation | Health and Quality of Life Outcomes, 2020, vol. 18, no. 1, articl. no. 105 | en_US |
dc.identifier.issn | 14777525 | - |
dc.identifier.uri | https://hdl.handle.net/20.500.14279/19342 | - |
dc.description.abstract | Background: The QOL-PCD questionnaire is a recently developed Health Related Quality of Life (HRQoL) instrument for Primary Ciliary Dyskinesia. The aim of this study was to translate the adult QOL-PCD questionnaire into Greek language and to conduct psychometric validation to assess its performance. Methods: Forward translations to Greek and backward translation to English were performed, followed by cognitive interviews in 12 adult PCD patients. The finalized translated version was administered to a consecutive sample of 31 adult, Greek speaking PCD patients in Cyprus for psychometric validation, which included assessment of internal consistency, test-retest reliability, construct and convergent validity. Internal consistency was assessed by Cronbach's alpha test in terms of the overall and sub-scales. Test-retest reliability was assessed by repeat administration of the questionnaire within 2 weeks and calculation of the intra-class correlation (ICC). Construct validity was assessed by comparing different groups of patients based on a-priori hypotheses and convergent validity was evaluated by examining associations between the QOL-PCD and SF-36 questionnaires. Results: Moderate to good internal consistency was observed (Cronbach's α: 0.46-0.88 across sub-scales) and test-retest reliability assessment demonstrated good repeatability for most scales (ICC: 0.67-0.91 across subscales). Patients of female gender, older age and lower lung function exhibited lower QOL-PCD scores in general, while high correlations for most QOL-PCD scales with corresponding SF-36 scales were observed, in particular for physical functioning (r = 0.78, p < 0.05). Conclusion: The adult version of QoL-PCD questionnaire has been translated according to international guidelines resulting to a cross-culturally validated Greek version which exhibited moderate to good metric properties in terms of internal consistency, stability, known-group and convergent validity. | en_US |
dc.format | en_US | |
dc.language.iso | en | en_US |
dc.relation.ispartof | Health and Quality of Life Outcomes | en_US |
dc.rights | © The Author(s). | en_US |
dc.rights.uri | http://creativecommons.org/licenses/by-nc-nd/4.0/ | * |
dc.subject | Primary Ciliary dyskinesia | en_US |
dc.subject | Psychometric testing | en_US |
dc.subject | Quality of life | en_US |
dc.title | Health related quality of life in adult primary Ciliary dyskinesia patients in Cyprus: development and validation of the Greek version of the QOL-PCD questionnaire | en_US |
dc.type | Article | en_US |
dc.collaboration | Hospital Archbishop Makarios III | en_US |
dc.collaboration | Frederick University | en_US |
dc.collaboration | University of Cyprus | en_US |
dc.collaboration | Shakolas Educational Center of Clinical Medicine | en_US |
dc.collaboration | University of Southampton | en_US |
dc.collaboration | Cyprus University of Technology | en_US |
dc.subject.category | Clinical Medicine | en_US |
dc.journals | Open Access | en_US |
dc.country | Cyprus | en_US |
dc.country | United Kingdom | en_US |
dc.subject.field | Medical and Health Sciences | en_US |
dc.publication | Peer Reviewed | en_US |
dc.identifier.doi | 10.1186/s12955-020-01360-w | en_US |
dc.relation.issue | 1 | en_US |
dc.relation.volume | 18 | en_US |
cut.common.academicyear | 2019-2020 | en_US |
item.fulltext | With Fulltext | - |
item.cerifentitytype | Publications | - |
item.grantfulltext | open | - |
item.openairecristype | http://purl.org/coar/resource_type/c_6501 | - |
item.openairetype | article | - |
item.languageiso639-1 | en | - |
crisitem.journal.journalissn | 1477-7525 | - |
crisitem.journal.publisher | Springer Nature | - |
crisitem.author.dept | Cyprus International Institute for Environmental and Public Health | - |
crisitem.author.dept | Department of Nursing | - |
crisitem.author.dept | Cyprus International Institute for Environmental and Public Health | - |
crisitem.author.faculty | Faculty of Health Sciences | - |
crisitem.author.faculty | Faculty of Health Sciences | - |
crisitem.author.faculty | Faculty of Health Sciences | - |
crisitem.author.orcid | 0000-0003-0511-5352 | - |
crisitem.author.orcid | 0000-0001-6358-8591 | - |
crisitem.author.orcid | 0000-0002-8339-9285 | - |
crisitem.author.parentorg | Faculty of Health Sciences | - |
crisitem.author.parentorg | Faculty of Health Sciences | - |
crisitem.author.parentorg | Faculty of Health Sciences | - |
Appears in Collections: | Άρθρα/Articles |
Files in This Item:
File | Description | Size | Format | |
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s12955-020-01360-w.pdf | Fulltext | 445.47 kB | Adobe PDF | View/Open |
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