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  4. The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia research
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The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia research

Journal
Research Involvement and Engagement
Date Issued
September 1, 2023
Author(s)
Charalambous, Marina  
Kountouri, Alexia  
Schwyter, Jürg Rainer  
Annoni, Jean-Marie  
Kambanaros, Maria  
DOI
10.1186/s40900-023-00484-9
Abstract
Patient and Public Involvement (PPI) in aphasia research requires researchers to include people with aphasia as research partners from the beginning of the study. Yet the quality of reporting on the level and type of involvement is poorly documented in the absence of a framework to guide PPI in aphasia research. This study aimed to extract the items and statements relevant for the development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for designing and implementing PPI in aphasia research, in collaboration with people with aphasia.
Subjects

People with aphasia

Co-design

Framework

Patient and public in...

Stroke

File(s)
Thumbnail Image
Name

PAOLI PAPER.pdf

Size

3.39 MB

Format

Adobe PDF

Checksum (MD5)

bdeff0a752c6c9eaf856e583f9ff4ae3

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