Please use this identifier to cite or link to this item:
https://hdl.handle.net/20.500.14279/24046
Title: | The use of proxies and proxy-reported measures: a report of the international society for quality of life research (ISOQOL) proxy task force | Authors: | Roydhouse, Jessica K. Cohen, Matthew L. Eshoj, Henrik R. Corsini, Nadia Yucel, Emre Rutherford, Claudia Wac, Katarzyna Berrocal, Allan Lanzi, Alyssa Nowinski, Cindy Roberts, Natasha Kassianos, Angelos P. Sebille, Veronique King, Madeleine T. Mercieca-Bebber, Rebecca |
Major Field of Science: | Social Sciences | Field Category: | Psychology | Keywords: | Proxy measures;Proxy-reported outcomes;Outcome measures;Quality of life;Systematic review | Issue Date: | 1-Jan-2021 | Source: | Quality of Life Research, 2021 | Journal: | Quality of Life Research | Abstract: | Aims: Proxy reports are often used when patients are unable to self-report. It is unclear how proxy measures are currently in use in adult health care and research settings. We aimed to describe how proxy reports are used in these settings, including the use of measures developed specifically for proxy reporting in adult health populations. Methods: We systematically searched Medline, PsycINFO, PsycTESTS, CINAHL and EMBASE from database inception to February 2018. Search terms included a combination of terms for quality of life and health outcomes, proxy-reporters, and health condition terms. The data extracted included clinical context, the name of the proxy measure(s) used and other descriptive data. We determined whether the measures were developed specifically for proxy use or were existing measures adapted for proxy use. Results: The database search identified 17,677 possible articles, from which 14,098 abstracts were reviewed. Of these, 11,763 were excluded and 2335 articles were reviewed in full, with 880 included for data extraction. The most common clinical settings were dementia (30%), geriatrics (15%) and cancer (13%). A majority of articles (51%) were paired studies with proxy and patient responses for the same person on the same measure. Most paired studies (77%) were concordance studies comparing patient and proxy responses on these measures. Discussion: Most published research using proxies has focused on proxy-patient concordance. Relatively few measures used in research with proxies were specifically developed for proxy use. Future work is needed to examine the performance of measures specifically developed for proxies. Systematic review registration: PROSPERO No. CRD42018103179 | URI: | https://hdl.handle.net/20.500.14279/24046 | ISSN: | 09629343 | DOI: | 10.1007/s11136-021-02937-8 | Rights: | © The Author(s), under exclusive licence to Springer Nature Switzerland AG 2021 | Type: | Article | Affiliation : | University of Tasmania Brown University University of Delaware Odense University Hospital University of South Australia Amgen, Global Health Economics Bristol Myers Squibb University of Sydney University of Geneva University of Copenhagen Northwestern University Feinberg School of Medicine Royal Brisbane and Women’s Hospital Queensland University of Technology University College London University of Nantes |
Publication Type: | Peer Reviewed |
Appears in Collections: | Άρθρα/Articles |
CORE Recommender
SCOPUSTM
Citations
20
11
checked on Aug 23, 2024
WEB OF SCIENCETM
Citations
10
Last Week
0
0
Last month
0
0
checked on Oct 29, 2023
Page view(s) 20
220
Last Week
0
0
Last month
7
7
checked on Aug 29, 2024
Google ScholarTM
Check
Altmetric
This item is licensed under a Creative Commons License