Παρακαλώ χρησιμοποιήστε αυτό το αναγνωριστικό για να παραπέμψετε ή να δημιουργήσετε σύνδεσμο προς αυτό το τεκμήριο:
https://hdl.handle.net/20.500.14279/19342
Τίτλος: | Health related quality of life in adult primary Ciliary dyskinesia patients in Cyprus: development and validation of the Greek version of the QOL-PCD questionnaire | Συγγραφείς: | Ioannou, Phivos Kouis, Panayiotis Kakkoura, Maria G. Kaliva, Margarita Toliopoulou, Aristoula Andreou, Kyriacos Behan, Laura Lucas, Jane S. Papanikolaou, Vicky Charalambous, George Middleton, Nicos Yiallouros, Panayiotis K. |
Major Field of Science: | Medical and Health Sciences | Field Category: | Clinical Medicine | Λέξεις-κλειδιά: | Primary Ciliary dyskinesia;Psychometric testing;Quality of life | Ημερομηνία Έκδοσης: | 22-Απρ-2020 | Πηγή: | Health and Quality of Life Outcomes, 2020, vol. 18, no. 1, articl. no. 105 | Volume: | 18 | Issue: | 1 | Περιοδικό: | Health and Quality of Life Outcomes | Περίληψη: | Background: The QOL-PCD questionnaire is a recently developed Health Related Quality of Life (HRQoL) instrument for Primary Ciliary Dyskinesia. The aim of this study was to translate the adult QOL-PCD questionnaire into Greek language and to conduct psychometric validation to assess its performance. Methods: Forward translations to Greek and backward translation to English were performed, followed by cognitive interviews in 12 adult PCD patients. The finalized translated version was administered to a consecutive sample of 31 adult, Greek speaking PCD patients in Cyprus for psychometric validation, which included assessment of internal consistency, test-retest reliability, construct and convergent validity. Internal consistency was assessed by Cronbach's alpha test in terms of the overall and sub-scales. Test-retest reliability was assessed by repeat administration of the questionnaire within 2 weeks and calculation of the intra-class correlation (ICC). Construct validity was assessed by comparing different groups of patients based on a-priori hypotheses and convergent validity was evaluated by examining associations between the QOL-PCD and SF-36 questionnaires. Results: Moderate to good internal consistency was observed (Cronbach's α: 0.46-0.88 across sub-scales) and test-retest reliability assessment demonstrated good repeatability for most scales (ICC: 0.67-0.91 across subscales). Patients of female gender, older age and lower lung function exhibited lower QOL-PCD scores in general, while high correlations for most QOL-PCD scales with corresponding SF-36 scales were observed, in particular for physical functioning (r = 0.78, p < 0.05). Conclusion: The adult version of QoL-PCD questionnaire has been translated according to international guidelines resulting to a cross-culturally validated Greek version which exhibited moderate to good metric properties in terms of internal consistency, stability, known-group and convergent validity. | URI: | https://hdl.handle.net/20.500.14279/19342 | ISSN: | 14777525 | DOI: | 10.1186/s12955-020-01360-w | Rights: | © The Author(s). | Type: | Article | Affiliation: | Hospital Archbishop Makarios III Frederick University University of Cyprus Shakolas Educational Center of Clinical Medicine University of Southampton Cyprus University of Technology |
Εμφανίζεται στις συλλογές: | Άρθρα/Articles |
Αρχεία σε αυτό το τεκμήριο:
Αρχείο | Περιγραφή | Μέγεθος | Μορφότυπος | |
---|---|---|---|---|
s12955-020-01360-w.pdf | Fulltext | 445.47 kB | Adobe PDF | Δείτε/ Ανοίξτε |
CORE Recommender
SCOPUSTM
Citations
2
checked on 6 Νοε 2023
WEB OF SCIENCETM
Citations
2
Last Week
0
0
Last month
0
0
checked on 29 Οκτ 2023
Page view(s) 50
291
Last Week
1
1
Last month
12
12
checked on 13 Μαϊ 2024
Download(s)
65
checked on 13 Μαϊ 2024
Google ScholarTM
Check
Altmetric
Αυτό το τεκμήριο προστατεύεται από άδεια Άδεια Creative Commons